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Majaczenie
192017-11-21 21:30
autor: Asiag, dodał 2017-10-18 15:25komentuj


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Witam wszystkich.

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U mojego męża lat 48, właśnie zdiagnozowano zz na podstawie badania węzła chłonnego. Ma wszystkie typowe objawy, ale oprócz tego od jakiegoś czasu majaczy, opowiada dziwne historie o sytuacjach, które nigdy nie miały miejsca. Czy spotkaliście się z czymś takim? Jestem przerażona.

autor: Asiag, dodał 2017-10-18 17:55komentuj


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> O 15:25, dnia 2017-10-18 Asiag napisał(-a):

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> Witam wszystkich.

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> U mojego męża lat 48, właśnie zdiagnozowano zz na podstawie badania węzła chłonnego. Ma wszystkie typowe objawy, ale oprócz tego od jakiegoś czasu majaczy, opowiada dziwne historie o sytuacjach, które nigdy nie miały miejsca. Czy spotkaliście się z czymś takim? Jestem przerażona.

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Chyba trafiłam w próżnię. Naprawdę nikt się z tym nie spotkał?

+0

autor: Plamer, dodał 2017-10-18 21:22komentuj


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> O 15:25, dnia 2017-10-18 Asiag napisał(-a):

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> Witam wszystkich.

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> U mojego męża lat 48, właśnie zdiagnozowano zz na podstawie badania węzła chłonnego. Ma wszystkie typowe objawy, ale oprócz tego od jakiegoś czasu majaczy, opowiada dziwne historie o sytuacjach, które nigdy nie miały miejsca. Czy spotkaliście się z czymś takim? Jestem przerażona.

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Majaczenie ma się nijak do ziarnicy złośliwej, udać się do psychiatry to najprawdopodobniej jedyna słuszna decyzja

+0

autor: Asiag, dodał 2017-10-18 22:24komentuj


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> O 21:22, dnia 2017-10-18 Plamer napisał(-a):

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> > O 15:25, dnia 2017-10-18 Asiag napisał(-a):

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> > Witam wszystkich.

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> > U mojego męża lat 48, właśnie zdiagnozowano zz na podstawie badania węzła chłonnego. Ma wszystkie typowe objawy, ale oprócz tego od jakiegoś czasu majaczy, opowiada dziwne historie o sytuacjach, które nigdy nie miały miejsca. Czy spotkaliście się z czymś takim? Jestem przerażona.

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> Majaczenie ma się nijak do ziarnicy złośliwej, udać się do psychiatry to najprawdopodobniej jedyna słuszna decyzja

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Mam nadzieję, że to sprawa psychiki, może depresji, bo obawa zmian w mózgu jest straszna. Słuchaj on strasznie się drapie. Jest już jedną chodzącą raną.

+0

autor: Plamer, dodał 2017-10-18 22:34komentuj


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> O 22:24, dnia 2017-10-18 Asiag napisał(-a):

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> > O 21:22, dnia 2017-10-18 Plamer napisał(-a):

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> > > O 15:25, dnia 2017-10-18 Asiag napisał(-a):

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> > > Witam wszystkich.

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> > > U mojego męża lat 48, właśnie zdiagnozowano zz na podstawie badania węzła chłonnego. Ma wszystkie typowe objawy, ale oprócz tego od jakiegoś czasu majaczy, opowiada dziwne historie o sytuacjach, które nigdy nie miały miejsca. Czy spotkaliście się z czymś takim? Jestem przerażona.

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> > Majaczenie ma się nijak do ziarnicy złośliwej, udać się do psychiatry to najprawdopodobniej jedyna słuszna decyzja

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> Mam nadzieję, że to sprawa psychiki, może depresji, bo obawa zmian w mózgu jest straszna. Słuchaj on strasznie się drapie. Jest już jedną chodzącą raną.

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Drapanie od ziarnicy, może depresja, do lekarza jak najszybciej :)

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A bierze sterydy? Np encorton? Mi po 90mg nieźle potrafiło odwalać.

+0

autor: Asiag, dodał 2017-10-18 23:06komentuj


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> O 22:34, dnia 2017-10-18 Plamer napisał(-a):

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> > O 22:24, dnia 2017-10-18 Asiag napisał(-a):

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> > > O 21:22, dnia 2017-10-18 Plamer napisał(-a):

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> > > > O 15:25, dnia 2017-10-18 Asiag napisał(-a):

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> > > > Witam wszystkich.

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> > > > U mojego męża lat 48, właśnie zdiagnozowano zz na podstawie badania węzła chłonnego. Ma wszystkie typowe objawy, ale oprócz tego od jakiegoś czasu majaczy, opowiada dziwne historie o sytuacjach, które nigdy nie miały miejsca. Czy spotkaliście się z czymś takim? Jestem przerażona.

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> > > Majaczenie ma się nijak do ziarnicy złośliwej, udać się do psychiatry to najprawdopodobniej jedyna słuszna decyzja

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> > Mam nadzieję, że to sprawa psychiki, może depresji, bo obawa zmian w mózgu jest straszna. Słuchaj on strasznie się drapie. Jest już jedną chodzącą raną.

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> Drapanie od ziarnicy, może depresja, do lekarza jak najszybciej :)

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> A bierze sterydy? Np encorton? Mi po 90mg nieźle potrafiło odwalać.

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Nie bierze sterydów. To początek leczenia. Jeszcze przed nim PET i chemia. Przez 5 miesięcy był leczony na wszystko co możliwe. Nie miał powiększonych węzłów chłonnych widocznych gołym okiem tylko w śródpiersiu i nadbrzuszu. Jedyne objawy to świąd skóry, osłabienie, duża utrata masy ciała, kaszel i stany gorączkowe. No i ostatnio te imaginacje...

+0

autor: Anias , dodał 2017-10-19 13:07komentuj


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Nie spotkałam sie z tym w obrazie ziarnicy. moze to reakcja na stres związany z choroba? Lekarz psychiatra na pewno ustabilizuje jego stan o ile konieczne lekami, wytłumaczyć mężowi, ze ta choroba dobrze rokuje. Prosimy o wiadomość jak będzie :)

+0

autor: Klaudia , dodał 2017-10-21 01:47komentuj


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> O 13:07, dnia 2017-10-19 Anias napisał(-a):

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> Nie spotkałam sie z tym w obrazie ziarnicy. moze to reakcja na stres związany z choroba? Lekarz psychiatra na pewno ustabilizuje jego stan o ile konieczne lekami, wytłumaczyć mężowi, ze ta choroba dobrze rokuje. Prosimy o wiadomość jak będzie :)

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Czy majeczenie jest na codzień, cxy podczas. Snu?

+0

autor: Asiag, dodał 2017-10-22 13:16komentuj


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> O 01:47, dnia 2017-10-21 Klaudia napisał(-a):

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> > O 13:07, dnia 2017-10-19 Anias napisał(-a):

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> > Nie spotkałam sie z tym w obrazie ziarnicy. moze to reakcja na stres związany z choroba? Lekarz psychiatra na pewno ustabilizuje jego stan o ile konieczne lekami, wytłumaczyć mężowi, ze ta choroba dobrze rokuje. Prosimy o wiadomość jak będzie :)

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>

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>

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> Czy majeczenie jest na codzień, cxy podczas. Snu?

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Na codzień. Z resztą mąż prawie cały czas śpi, jest bardzo słaby.

+0

autor: Janek, dodał 2017-10-22 15:49komentuj


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> O 13:16, dnia 2017-10-22 Asiag napisał(-a):

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> > O 01:47, dnia 2017-10-21 Klaudia napisał(-a):

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> > > O 13:07, dnia 2017-10-19 Anias napisał(-a):

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> > > Nie spotkałam sie z tym w obrazie ziarnicy. moze to reakcja na stres związany z choroba? Lekarz psychiatra na pewno ustabilizuje jego stan o ile konieczne lekami, wytłumaczyć mężowi, ze ta choroba dobrze rokuje. Prosimy o wiadomość jak będzie :)

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> >

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> >

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> > Czy majeczenie jest na codzień, cxy podczas. Snu?

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> Na codzień. Z resztą mąż prawie cały czas śpi, jest bardzo słaby.

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Moim zdaniem, chce zwrócić na siebie uwagę, chce rozmawiać o wszystkim tylko nie o swojej chorobie.

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autor: Janek, dodał 2017-10-22 15:53komentuj


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> > > Czy majeczenie jest na codzień, cxy podczas. Snu?

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> > Na codzień. Z resztą mąż prawie cały czas śpi, jest bardzo słaby.

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> Moim zdaniem, chce zwrócić na siebie uwagę, chce rozmawiać o wszystkim tylko nie o swojej chorobie.

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Uciekło mi leżałem z takim starszym panem na klinice w 1987 r. on opowiadał nie stworzone rzeczy, gdy spytaliśmy rodziny odwiedzające tego pana czy tak było zaprzeczały robił im wtedy awantury, pozdrawiam

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autor: Asiag, dodał 2017-10-22 16:29komentuj


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> O 15:53, dnia 2017-10-22 Janek napisał(-a):

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>

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> > > > Czy majeczenie jest na codzień, cxy podczas. Snu?

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> > > Na codzień. Z resztą mąż prawie cały czas śpi, jest bardzo słaby.

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> > Moim zdaniem, chce zwrócić na siebie uwagę, chce rozmawiać o wszystkim tylko nie o swojej chorobie.

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> Uciekło mi leżałem z takim starszym panem na klinice w 1987 r. on opowiadał nie stworzone rzeczy, gdy spytaliśmy rodziny odwiedzające tego pana czy tak było zaprzeczały robił im wtedy awantury, pozdrawiam

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Dzięki. Opowiada o kablach, które ma w nogach. Nie pamięta czy jadł. No i oczywiście denerwuje się bardzo jak nie wiem o co chodzi. Początek choroby pod koniec maja 2017, tzn początek objawów. Te imaginacje od ok 1,5 miesiąca. Zaraz sama zwariuję od stresu.

+0

autor: Asiag, dodał 2017-11-01 11:10komentuj


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> O 16:29, dnia 2017-10-22 Asiag napisał(-a):

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> > O 15:53, dnia 2017-10-22 Janek napisał(-a):

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> >

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> > > > > Czy majeczenie jest na codzień, cxy podczas. Snu?

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> > > > Na codzień. Z resztą mąż prawie cały czas śpi, jest bardzo słaby.

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> > > Moim zdaniem, chce zwrócić na siebie uwagę, chce rozmawiać o wszystkim tylko nie o swojej chorobie.

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> > Uciekło mi leżałem z takim starszym panem na klinice w 1987 r. on opowiadał nie stworzone rzeczy, gdy spytaliśmy rodziny odwiedzające tego pana czy tak było zaprzeczały robił im wtedy awantury, pozdrawiam

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> Dzięki. Opowiada o kablach, które ma w nogach. Nie pamięta czy jadł. No i oczywiście denerwuje się bardzo jak nie wiem o co chodzi. Początek choroby pod koniec maja 2017, tzn początek objawów. Te imaginacje od ok 1,5 miesiąca. Zaraz sama zwariuję od stresu.

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Wczoraj był PET... Mąż rozbłysnął jak choinka... Węzły praktycznie wszystkie, śledziona, kości: kręgi, mostek, biodra...

+0

autor: Anias, dodał 2017-11-01 16:57komentuj


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> O 11:10, dnia 2017-11-01 Asiag napisał(-a):

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> > O 16:29, dnia 2017-10-22 Asiag napisał(-a):

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> > > O 15:53, dnia 2017-10-22 Janek napisał(-a):

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> > >

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> > > > > > Czy majeczenie jest na codzień, cxy podczas. Snu?

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> > > > > Na codzień. Z resztą mąż prawie cały czas śpi, jest bardzo słaby.

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> > > > Moim zdaniem, chce zwrócić na siebie uwagę, chce rozmawiać o wszystkim tylko nie o swojej chorobie.

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> > > Uciekło mi leżałem z takim starszym panem na klinice w 1987 r. on opowiadał nie stworzone rzeczy, gdy spytaliśmy rodziny odwiedzające tego pana czy tak było zaprzeczały robił im wtedy awantury, pozdrawiam

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> > Dzięki. Opowiada o kablach, które ma w nogach. Nie pamięta czy jadł. No i oczywiście denerwuje się bardzo jak nie wiem o co chodzi. Początek choroby pod koniec maja 2017, tzn początek objawów. Te imaginacje od ok 1,5 miesiąca. Zaraz sama zwariuję od stresu.

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> Wczoraj był PET... Mąż rozbłysnął jak choinka... Węzły praktycznie wszystkie, śledziona, kości: kręgi, mostek, biodra...

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Jeszcze nie przesądza to o wszystkim. Ważne jaka reakcja na leki. Przy tzw. IV stopniu są ośrodki, które dają Adcetris w połaczeniu z chemioterapią, na pewno Katowice. A gdzie macie swój ośrodek? Głowa wolna od zmian ?

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Oczywiście decyzję o leczeniu podejmą lekarze, ale warto porozmawiać o opcjach, wielu tu pisze o tym, np. ( z pozdrowieniami ) Superkonkord

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Pozdrawiam w pięknym dniu Wszystkich Świętych

+0

autor: Asiag, dodał 2017-11-01 19:33komentuj


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> O 16:57, dnia 2017-11-01 Anias napisał(-a):

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> > O 11:10, dnia 2017-11-01 Asiag napisał(-a):

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> > > O 16:29, dnia 2017-10-22 Asiag napisał(-a):

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> > > > O 15:53, dnia 2017-10-22 Janek napisał(-a):

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> > > >

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> > > > > > > Czy majeczenie jest na codzień, cxy podczas. Snu?

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> > > > > > Na codzień. Z resztą mąż prawie cały czas śpi, jest bardzo słaby.

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> > > > > Moim zdaniem, chce zwrócić na siebie uwagę, chce rozmawiać o wszystkim tylko nie o swojej chorobie.

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> > > > Uciekło mi leżałem z takim starszym panem na klinice w 1987 r. on opowiadał nie stworzone rzeczy, gdy spytaliśmy rodziny odwiedzające tego pana czy tak było zaprzeczały robił im wtedy awantury, pozdrawiam

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> > > Dzięki. Opowiada o kablach, które ma w nogach. Nie pamięta czy jadł. No i oczywiście denerwuje się bardzo jak nie wiem o co chodzi. Początek choroby pod koniec maja 2017, tzn początek objawów. Te imaginacje od ok 1,5 miesiąca. Zaraz sama zwariuję od stresu.

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> > Wczoraj był PET... Mąż rozbłysnął jak choinka... Węzły praktycznie wszystkie, śledziona, kości: kręgi, mostek, biodra...

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> Jeszcze nie przesądza to o wszystkim. Ważne jaka reakcja na leki. Przy tzw. IV stopniu są ośrodki, które dają Adcetris w połaczeniu z chemioterapią, na pewno Katowice. A gdzie macie swój ośrodek? Głowa wolna od zmian ?

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>

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> Oczywiście decyzję o leczeniu podejmą lekarze, ale warto porozmawiać o opcjach, wielu tu pisze o tym, np. ( z pozdrowieniami ) Superkonkord

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>

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> Pozdrawiam w pięknym dniu Wszystkich Świętych

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Białystok. Głowa czysta.

+0

autor: Anias, dodał 2017-11-01 21:17komentuj


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Powodzenia

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mój brat też startował z IV, jest po autoprzeszczepie ( 4 lata od rozpoznania ) i daje radę

+0

autor: Asiag, dodał 2017-11-05 19:41komentuj


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> O 21:17, dnia 2017-11-01 Anias napisał(-a):

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> Powodzenia

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>

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> mój brat też startował z IV, jest po autoprzeszczepie ( 4 lata od rozpoznania ) i daje radę

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Już po pierwszej chemii. Przeszła zadziwiająco spokojnie. Mąż nawet jadł obiad w trakcie jej podawania. A nastawiłam się na armagedon. Ale też nie uległy złagodzeniu żadne z objawów. Skóra jak swędziała tak swędzi i gorączka do 40 stopni

+0

autor: Asiag, dodał 2017-11-21 09:17komentuj


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> O 19:41, dnia 2017-11-05 Asiag napisał(-a):

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> > O 21:17, dnia 2017-11-01 Anias napisał(-a):

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> > Powodzenia

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> >

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> > mój brat też startował z IV, jest po autoprzeszczepie ( 4 lata od rozpoznania ) i daje radę

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> Już po pierwszej chemii. Przeszła zadziwiająco spokojnie. Mąż nawet jadł obiad w trakcie jej podawania. A nastawiłam się na armagedon. Ale też nie uległy złagodzeniu żadne z objawów. Skóra jak swędziała tak swędzi i gorączka do 40 stopni

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Efekty po pierwszej chemii: brak gorączki, neuropatia (uszkodzenie nerwów w nogach), wyniki krwi - stan zagrażający życiu... Ale czynnik wzrostu podany, chemia przesunęła się o 3 dni. Mąż chodzi o kulach. Nie wiem co lepsze, wymioty czy porażenie nerwów...

+0

autor: Janek, dodał 2017-11-21 20:28komentuj


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> O 09:17, dnia 2017-11-21 Asiag napisał(-a):

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> > O 19:41, dnia 2017-11-05 Asiag napisał(-a):

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> > > O 21:17, dnia 2017-11-01 Anias napisał(-a):

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> > > Powodzenia

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> > >

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> > > mój brat też startował z IV, jest po autoprzeszczepie ( 4 lata od rozpoznania ) i daje radę

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> > Już po pierwszej chemii. Przeszła zadziwiająco spokojnie. Mąż nawet jadł obiad w trakcie jej podawania. A nastawiłam się na armagedon. Ale też nie uległy złagodzeniu żadne z objawów. Skóra jak swędziała tak swędzi i gorączka do 40 stopni

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> Efekty po pierwszej chemii: brak gorączki, neuropatia (uszkodzenie nerwów w nogach), wyniki krwi - stan zagrażający życiu... Ale czynnik wzrostu podany, chemia przesunęła się o 3 dni. Mąż chodzi o kulach. Nie wiem co lepsze, wymioty czy porażenie nerwów...

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Taka szybka diagnoza ? był u neurologa ? myślę, że za nerwowo podchodzisz do leczenia, gorączka spadła to rokuje dobrze większość z nas to przerabiała, brała czynnik wzrostu daj na luz, będzie dobrze.

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autor: Asiag, dodał 2017-11-21 21:30komentuj


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> O 20:28, dnia 2017-11-21 Janek napisał(-a):

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> > O 09:17, dnia 2017-11-21 Asiag napisał(-a):

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> > > O 19:41, dnia 2017-11-05 Asiag napisał(-a):

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> > > > O 21:17, dnia 2017-11-01 Anias napisał(-a):

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> > > > Powodzenia

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> > > >

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> > > > mój brat też startował z IV, jest po autoprzeszczepie ( 4 lata od rozpoznania ) i daje radę

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> > > Już po pierwszej chemii. Przeszła zadziwiająco spokojnie. Mąż nawet jadł obiad w trakcie jej podawania. A nastawiłam się na armagedon. Ale też nie uległy złagodzeniu żadne z objawów. Skóra jak swędziała tak swędzi i gorączka do 40 stopni

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> > Efekty po pierwszej chemii: brak gorączki, neuropatia (uszkodzenie nerwów w nogach), wyniki krwi - stan zagrażający życiu... Ale czynnik wzrostu podany, chemia przesunęła się o 3 dni. Mąż chodzi o kulach. Nie wiem co lepsze, wymioty czy porażenie nerwów...

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> Taka szybka diagnoza ? był u neurologa ? myślę, że za nerwowo podchodzisz do leczenia, gorączka spadła to rokuje dobrze większość z nas to przerabiała, brała czynnik wzrostu daj na luz, będzie dobrze.

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A tak neurolog był na konsultacji na onkologii

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