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Mój mąż ma chłoniaka, mamy trójkę małych dzieci . Bardzo trudno jest mi pogodzić się z chorobą męża. Nie bardzo wiem jak mam mu pomóc. Jak dalej żyć! Co mam powiedzieć dzieciom?
Może ktoś będzie mógł mi coś bliżej powiedzieć o wynikach nic z tego nie rozumiem.
ROZPOZNANIE:
25C 502526 - CHL
Obraz histologiczny odpowiada:
Nodular sclerosis classical Hodgkin lymphoma.
ICD-0 code:
9663/3.
Profil immunohistochemiczny nie jest w pełni typowy:
'komórki chłoniaka wykazują obecność antygenu CD30 z silną ko-ekspresjąCD20, przy ujemnej reakcji na CD15, PAX5, LCA, CD3, EBV-LMP1, EMA, ALK-1. |
| autor: Asowa, dodał 2011-04-26 22:04 | komentuj |
> O 14:21, dnia 2011-04-26 Baldi napisał(-a):
> klasyfikacja jest tutaj: http://www.ziarnica.pl/index.php?te...
>
> opis odpowiada ziarnicy zlosliwej typu NS.
>
> w WIELKIM skrocie: bedzie dobrze <lol>
Baldi nie kłamie;)
+1 |
| Na pewno wszystko będzie dobrze! Też mam dwójkę dzieciaków, martwiłem się co z nimi będzie. Jestem półtora roku po przeszczepie i w sumie zapomniałem już o tej całej mojej historii. To tylko choroba, jak każda inna. Może trochę poważniejsza, ale zawsze mogło być gorzej ;) Pozdrawiam
+0 |
| > O 11:30, dnia 2011-04-26 Kasia napisał(-a):
> Mój mąż ma chłoniaka, mamy trójkę małych dzieci . Bardzo trudno jest mi pogodzić się z chorobą męża. Nie bardzo wiem jak mam mu pomóc. Jak dalej żyć! Co mam powiedzieć dzieciom?
> Może ktoś będzie mógł mi coś bliżej powiedzieć o wynikach nic z tego nie rozumiem.
> ROZPOZNANIE:
> 25C 502526 - CHL
> Obraz histologiczny odpowiada:
> Nodular sclerosis classical Hodgkin lymphoma.
> ICD-0 code:
> 9663/3.
> Profil immunohistochemiczny nie jest w pełni typowy:
> 'komórki chłoniaka wykazują obecność antygenu CD30 z silną ko-ekspresjąCD20, przy ujemnej reakcji na CD15, PAX5, LCA, CD3, EBV-LMP1, EMA, ALK-1.
Klasyczny NS CSII lub CSIII pewnie.
Żył będzie
+0 |
| autor: Kasia77, dodał 2011-06-01 18:58 | komentuj |
> O 11:30, dnia 2011-04-26 Kasia napisał(-a):
> Mój mąż ma chłoniaka, mamy trójkę małych dzieci . Bardzo trudno jest mi pogodzić się z chorobą męża. Nie bardzo wiem jak mam mu pomóc. Jak dalej żyć! Co mam powiedzieć dzieciom?
> Może ktoś będzie mógł mi coś bliżej powiedzieć o wynikach nic z tego nie rozumiem.
> ROZPOZNANIE:
> 25C 502526 - CHL
> Obraz histologiczny odpowiada:
> Nodular sclerosis classical Hodgkin lymphoma.
> ICD-0 code:
> 9663/3.
> Profil immunohistochemiczny nie jest w pełni typowy:
> 'komórki chłoniaka wykazują obecność antygenu CD30 z silną ko-ekspresjąCD20, przy ujemnej reakcji na CD15, PAX5, LCA, CD3, EBV-LMP1, EMA, ALK-1.
Bardzo dziękuję za wsparcie. Teraz mój mąż jest na oddziale onkologii. Wczoraj bardzo miła pani doktor powiedziała mi, że wyniki (krew, rtg klatki piersiowej)wyszły korzystnie. Planują leczenie jednodniowe co dwa tygodnie. Największego guza ma w śródpiersiu ma ok. 9 cm. Zajęte ma węzły chłonne szyjne , podobojczykowe i śródpiersia.
Dzisiaj miał pierwszą chemię. Trzy razy mu ją odłączali , bo tracił przytomność i wymiotował. Powiedział mi, że nie zgodzi się na kolejne, bo tego nie przeżyje.
Jestem przerażona :(
+0 |
| autor: Asowa, dodał 2011-06-01 20:44 | komentuj |
> Bardzo dziękuję za wsparcie. Teraz mój mąż jest na oddziale onkologii. Wczoraj bardzo miła pani doktor powiedziała mi, że wyniki (krew, rtg klatki piersiowej)wyszły korzystnie. Planują leczenie jednodniowe co dwa tygodnie. Największego guza ma w śródpiersiu ma ok. 9 cm. Zajęte ma węzły chłonne szyjne , podobojczykowe i śródpiersia.
> Dzisiaj miał pierwszą chemię. Trzy razy mu ją odłączali , bo tracił przytomność i wymiotował. Powiedział mi, że nie zgodzi się na kolejne, bo tego nie przeżyje.
> Jestem przerażona :(
Reakcja twojego męża jest zrozumiała bo czuje się fatalnie.
Bądź przy nim i go wspieraj.
Jest bardzo duża szansa, że po kolejnej chemii będzie lepiej, bo organizm będzie inaczej przyjmował leki.
Dużo sił wam życzę w tej walce.
+0 |
| autor: Baska, dodał 2011-06-01 21:05 | komentuj |
> O 18:58, dnia 2011-06-01 Kasia77 napisał(-a):
> > O 11:30, dnia 2011-04-26 Kasia napisał(-a):
Powiedział mi, że nie zgodzi się na kolejne, bo tego nie przeżyje.
> Jestem przerażona :(
Kasiu, musisz wiedziec ze to leczenie nie jest przyjemne, ja nadal - mimo ze jestem 8 lat w remisji - mowie ze "przeszlam pieklo" i nie wiem czy zdecydowalabym sie na to leczenie gdybym miala nawrot choroby. Ale do wszystkiego da sie przyzwyczaic, rowniez do chemii, po 2-3 wlewach organizm sie przyzwyczai. Niestety niektorzy ludzie sa ekstremalnie wrazliwi na bol i juz sama mysl o jakims zabiegu powoduje zle samopoczucie. Ja bym proponowala oprocz chemii spotkania z psychologiem. A w czasie chemii lekarz powinien podac mezowi koniecznie relanium. Pozdrawiam i zycze duzo sily.
+0 |
| autor: Nessa, dodał 2011-06-01 22:05 | komentuj |
Popieram pomysł relanium albo innego leku uspokajającego. Wybierzcie się do psychiatry. Ja zaczęłam gorzej znosić ostatnie wlewy i dostałam xanax. Teraz przynajmniej mam luki w pamięci i nie pamiętam tych najgorszych chwil.
+0 |
| autor: INES, dodał 2012-07-06 21:00 | komentuj |
Tak, chemia jest okropna. Ale z palety przesranych historii chorobowych, nie jest taka najgorsza ;)
Ukochane pielęgniarki z Banacha, zlitowały się nade mną i po 2 wizycie dostawałam już regularnie relanium. W trakcie leczenia, parę lekarzy się buntowało, ale ja nalegałam na podanie - zawsze.
Dla mnie - to idealny sposób poradzenia sobie z chemią, bo fatalnie znosiłam. Dożylnie podane relanium, dawało mi cudowny odpływ i przespałam grzecznie na chaju cały wlew. Polecam :))))
Mężowi i Tobie życze dużo siły i miłości.
Pamiętaj, nie owijaj wszystkiego w opakowanie choroby. Zachowujcie w miarę możliwości zwyczaje, rozrywki. Spotykajcie się dużo z rodziną i przyjaciółmi. Nie ma co robić wokół tego wszystkiego atmosfery pożałowania i litości. Dużo wsparcia, uśmiech na zęby i do przodu!!!
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> O 11:30, dnia 2011-04-26 Kasia napisał(-a):
> Mój mąż ma chłoniaka, mamy trójkę małych dzieci . Bardzo trudno jest mi pogodzić się z chorobą męża. Nie bardzo wiem jak mam mu pomóc. Jak dalej żyć! Co mam powiedzieć dzieciom?
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Heja
Mamy lustrzaną historię :(
Mąż dowiedział się w zeszłym tygodniu ze ma ziarnicę typ NS I
Mamy trójkę małych dzieci
Przepraszam, być może zabrzmi to bardzo egoistycznie, ale powiedzcie mi proszę, czy poradzę sobie z chorobą męża, trójką dzieci oraz domem sama?
Proszę nie zrozumcie mnie zle, wiem, że tu o mnie nie chodzi, ale chcę naszą rodzinę przygotować jak najlepiej do walki z tą chorobą. Mężowi zapewnić jak najlepszą opiekę w tym trudnym okresie, ale nie mogę tez zaniedbywać z tego tytułu dzieci....
Czy bedzie nam potrzebna pomoc - dziadków na przykład?
Jak to będzie wyglądać? Czy ktoś może mi pomóc???
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